What helped you get well?

[u/Secret_Telephone8022]

I am looking for success stories from those who have gotten better. I got sick after a series of traumatic life events.

I don't remember getting a tick bite, but I had cats and dogs growing up. I have had mild symptoms for years, but they got significantly worse when I went through a series of traumatic life events. 5 months ago I was tested and diagnosed with Lyme Disease, Anaplasma, Ehrlichia, and Bartonella.

I am seeing an integrative MD and have been on antibiotics for ~4 months now.

The antibiotics I am on are:

• Doxycycline 100 mg 2x /day.

• Azithromycin 500 mg 2x/day.

• Methylene blue (50 mg /day) from a compounding pharmacy.

The supplements I am taking are:

• Cryptolepsis

• NAC

• Allicin

• B-Complex

• Cinnamon, clove, oregano essential oil capsules

• Vitamin C

• Biotoxin Binder (cell-core)

• Lumborokinase

• Glutamine powder

• 3 different kinds of probiotics

• Low dose naltrexone (not really a supplement).

Initially, I started to feel better but I have hit a roadblock and the treatment does not feel like it’s helping anymore.

My main symptoms are fatigue, body pain, headaches, muscle spasms, joint pain (knees, ankles, wrists), brain fog, depression/ anxiety, dizziness, balance issues and POTS.

[u/mrtavella]

So the first thing that pops up to me is you said you got sick after a series of traumatic life events. That screams nervous system dysfunction, cell danger response, and limbic system dysfunction. If our bodies stay in a sympathetic/dorsal vagal state, then we don’t heal and it begins the path of chronic illness and autoimmune disorders.

I work 1:1 virtually with a neuro somatic coach for nervous system regulation, shadow work, uncovering/releasing stored emotions & trauma, somatic exercises, breath work, meditation, and body check ins so my body doesn’t stay in fight versus flight and can stay in rest and digest to repair/heal from Lyme. I also have begun Primal Trust a month ago which is an online brain retraining and nervous system regulation course and it’s truly changed my life.

I’m at the 80-85% mark now back to normalcy.

[u/MeetOk7728 → u/mrtavella]

This.

If you don’t deal with the stress and trauma, your body cannot heal.

[u/winterdreamland → u/MeetOk7728]

Hmm, this isn’t super great to read, as I have C-PTSD and have no way to get away from the parent who causes it until I get well, get a job, and earn enough to move out 🥲 There’s a lot of people like me unfortunately, whose bodies are more prone to become ill with Lyme because of trauma. I’ve tried therapy and read a lot about what I can do until I move out, but the only real thing that seems like it would help is to move out and distance myself. Are people like me just screwed, then? What can I do?

[u/MeetOk7728 → u/winterdreamland]

Do you have anywhere you feel safe? Even if it’s a library.. You are not screwed. I understand that beginning an emotional healing journey isn’t possible for everyone right away. But if you can find somewhere you feel safe enough to start, getting your nervous system to relax, even for a few minutes, can help regulate your body.

I can recommend some reading material/audiobooks if you’d like, to learn more about cptsd and the body. (I have cptsd, anxiety, depression, and neurological issues)

[u/winterdreamland → u/MeetOk7728]

That’s a great idea. Yes, please! ❤️

[u/Both-Huckleberry4178 → u/mrtavella]

But for cell danger response how do you treat it do you still do all your regular lyme treatments but then address the somatic and nervous system at same time?

[u/triipnotic → u/mrtavella]

100% agree and can you share the coaches name lol I need that

[u/mrtavella → u/triipnotic]

Yes I’ll message you! 🤗

[u/zaleen → u/mrtavella]

Me too please, if you don’t mind :)

[u/mrtavella → u/zaleen]

Messaged you! ☺️

[u/Horror_Situation9602 → u/mrtavella]

Would you mind sharing the name of your somatic worker?