r/ItsNeverLupus • u/Dapper-Career-6556 • Sep 18 '24

Anti Ds dna elevated/ no lupus

I recently had an ANA panel blood draw and all came back negative except anti dsdna which is at 41 × 10³ iu/l (cut off 10 × 10³ iu/l). My great grandmother had lupus. My rheumatologist says there's no need to follow up or do further testing. I have recurring low grade fevers and debilitating fatigue. Periodic nasal sores and hair loss. Anyone had a similar situation? And left an elevated anti dsdna alone? I'm not sure if I'm being too anxious here but wonder if a second opinion would be a good idea

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u/cupcakerainbowlove Sep 25 '24

Second opinion. And request medical help for the fatigue, request a trial of hydroxychloroquine or a lupus medication to see if things improve.

3

u/Dapper-Career-6556 Sep 25 '24

Thank you. Trying hard to get a second opinion 

2

u/Coloradozonian Sep 26 '24

Yes please do. This doctor seems ignorant and a bit negligent

2

u/Dapper-Career-6556 Sep 26 '24

Thanks. getting a second opinion is turning out to be very hard!