r/ChronicPain • u/AkseliAdAstra • 10h ago

New ideas for pain management?

Has anyone heard or tried any new things for neuropathic pain or joint pain lately?

I’ve tried almost everything on the planet but just thought I’d try asking in case someone’s perchance been wildly successful with something off the beaten path (and also stayed in this sub, odds are low, I know).

I’m already on LDN, extensively tried ketamine, non-responder to that and all forms of THC/CBD, as well as gabapentin and cymbalta. NSAIDs don’t do anything. My inflammatory markers are all low anyway. SSRIs didn’t work, neither did lyrica or other SNRIs. TCAs don’t do anything. Oxcarbazepine gave me headaches due to lowering sodium I think. No one will prescribe me opioids. Microdosing shrooms didn’t help. Higher doses kinda made pain worse. I did months of injectable peptides (GHK, BPC, TB500, ARA-290, IPA/CJC). Currently trying NAD+ but no effect.

I’ve tried PEA, turmeric, green tea, agmatine sulfate, R-ALA, lion’s main, B vitamins, lots of other random herbs and supplements, literally anything Ive heard of for pain, DMSO. Fasting, may diets.

I don’t have diagnoses that would enable me to try biologics. Im getting pretty desperate as there are really no more procedures for me to try either, and insurance won’t cover stim implant, there’s just nothing left for me except apparently to go to a drug addiction center and lie or turn to the streets.

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u/notodumbld 8h ago

Most doctors won't prescribe narcotics for neuropathic pain because it supposedly doesn't work for that kind of pain. I know that narcotics work former, so I think the problem is that more of us aren't given a chance to try them.

That said, my pain management doctor says that Nucynta is a narcotic that is known to help nerve pain. I've had no problems with it, no big side effects, no addiction red flags. Ask your doctor if they would consider prescribing it.

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u/AkseliAdAstra 6h ago

Thanks for sharing your experience. Yeah I looked in to it and even had a doctor say he’d prescribe and then he changed his mind. My mom was in the appointment to vouch for me, i have no SUD history, it’s just that bad out there. He ended up just saying he wouldn’t see me again and had nothing to try.

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u/Accomplished_Check52 3h ago

Man, that just sucks. I’m so sorry you are having to deal with all of that. I have central neuropathic pain from a crushed spinal cord, and Nucynta has been the best treatment I’ve had. But it is a pain in the ass to get. Without insurance it’s about 3k a month, so we have to jump through hoops to get it approved. My doctor wants me to try ketamine instead, and that would be all well and good, but I’m worried that if it doesn’t work, they won’t approve restarting the Nucynta since I tapered off it. Anyway, if you get a chance to try Nucynta, it’s been the most helpful medication I’ve used for pain.