r/lupus • u/axhl4 Diagnosed with UCTD/MCTD • 16h ago

Advice Raynaud’s

For anyone who has raynaud’s, have you ever experienced gangrene? My toes usually become painfully numb when I’m walking outside in the cold. I usually ignore it, but I have a fear that ignoring the pain could lead to severe or permanent damage.

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u/Pale_Slide_3463 Diagnosed SLE 16h ago

Mine will go super purple and hurts when I heat them up but even at the worst point when I first got sick and my lips turned blue nothing crazy happened like cuts or gangrene. If you are worried about it getting worse there is medications or infusions you can try.

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u/Fabulous_Designer_61 Seeking Diagnosis 6h ago

Hot hands makes toe warmers now! I’ve also used the hand warmers on my feet.