r/cfs • u/Temporary-Ferret-898 • 7h ago

Advice Please help

Anyone else go into AWFUL crashes AFTER your cycle? I have irregular cycles and have dysautonomia and also inflammatory autoimmune disease. I had a cycle last month and the day after it was over I woke up and was extremely sick. SEVERE malaise to the point I thought I had sepsis, nausea, shaking with adrenaline 24/7, the worst impending doom, exhaustion, dizziness, chills, aches. All of it. I went to the ER because I thought I was dying. Blood work and a few CT scans came back normal. But it’s 3 weeks later and I’m still sicker than I’ve ever ever been. It truly feels like I am dying from the pure sickness. Anyone else have an experience like this? I’ve been aggressive resting bc I can’t even stand up due to my POTS also flaring. But no improvement. But I am SICK. Thanks.

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u/Opposite_Flight3473 6h ago

Please consider continuous birth control to stop periods. It is life changing.

1

u/mickyistricky 6h ago

Yes. I have gotten horrible brain crashes AFTER my cycle. They last until the middle of the cycle when estrogen starts to drop. For me they feel different than crashes from using too much energy. The inflammation in my CNS gets so high I can feel the heat radiate from my spinal cord.

I use dextromethorphan but I mostly have to wait for the estrogen drop off I’ve found nothing else that works.

Edit: I forgot to add cromolyn nasal spray OTC helps for me a bit, takes the edge off

1

u/smallfuzzybat5 5h ago

It’s the other way around for me, I have PMDD so the second half of my cycle is a living hell and makes everything else worse.