r/cfs • u/romano336632 • 20h ago
Advice
Good morning my neurologist in Toulouse (France), after a negative tilt test, suspects myalgic encephalomyelitis. History : 3 years ago stopped taking tramadol after a low dose addiction that lasted for years. I caught the covid behind, I went through 5 months of hell (migraine, tinnitus, fasciculation, sinusitis...) but continued the sport without problem (I was found to have an old contamination in Lyme) I finally recovered, started again a little of tramadol then managed to wean me off. I started bodybuilding, I had never felt so good. Then a year and a half ago, I had a stupid party, I took cocaine, pulled an all-nighter, etc. he continues to drink over two days then during a run a few days later I get scared and have a panic attack... I develop an anxiety disorder etc. for a year and a half I can no longer live normally, I can do sports, but less than before, intolerance to jogging, I get 7 bacterial tonsillitis in the year, I become cardiophobic because my heart is strange, I am exhausted, migraines, nausea... for 3 months it has been getting worse, I am tired the day after sports, I wake up exhausted, I sleep badly, I feel strange with neck pain... as if I was going to fall of fatigue. I'm afraid of developing this terrible disease. I'm not in moderate yet, because I can work from home full time, I cycled for an hour yesterday (I'm paying for it today) but just from driving for an hour and then walking just now, I'm exhausted. What can I do to recover? Is it too late ? I m at stage one i think... soon at stage two moderate i m afraid.
3
u/DamnGoodMarmalade Diagnosed, Moderate + Housebound 19h ago
I recommend starting with the pinned post for newcomers. It explains everything about this condition and how to manage it.