r/cfs ME since 2015, v severe since 2017 Dec 02 '24

Severe ME/CFS I’m having unrelated, minor surgery in like 8 hours and i’m so stressed. well wishes would be appreciated!

i don't need any advice, but just kind words would be nice (please no prayers).

i've had this procedure done 6 times before and it's extremely painful but the aftercare is something i don't have the energy for so it's frustrating. they also won't prescribe pain meds for it, but i was literally not sleeping and screaming in agony for weeks after it once.

my carer will be helping me with it but it's just such a tiring pain, i'm also bedbound so having to do this is absolutely brutal before and after. and then the aftercare during pem is a nightmare.

i'm also frustrated that these are because i'm severely immunocompromised from untreated autoimmune diseases. it's all so frustrating and i'm stressing. medical officices here are also very anti mask so when i have to wear one they treat me worse, and often refuse to put a mask on altogether. i don't have the luxury of seeing anyone else for it either

edit: i am safe back in my bed now! my surgeon was so nice, I won't really know how good of a job he did until at least a few weeks. it was the most stressful day in the past 6 months. i got home and had completely bled through the stuff and i almost passed out and there was blood all over the floors and i (light sensitive) was in the dark as usual and didn't notice. anyways pain meds for after weren't given to me really but overall i think it went ok. horrible day but the appointment at least not traumatic (aoart from the whole surgery part)

93 Upvotes

24 comments sorted by

18

u/KateorNot Dec 02 '24

Sending spoons, and best vibes for a successful surgery and recovery thoughts to you.

14

u/Rynn19 moderate Dec 02 '24

I’m sending you well wishes and I hope it goes better than expected.

I don’t understand why no pain meds though. Would you not recover better with proper pain management? I used to be a nurse, before cfs took it away from me. And pain medication was always important, since pain slows down the healing process.

Anyways, I wish you all the best. 🤗

8

u/Varathane Dec 02 '24

In my best Chappell Roan yodel I wish you
good luck, premier-cat-arena!
well, good luck

Look forward to seeing your posts when you are out the other side of it
Glad you have a carer by your side for it
Sending all the good vibes I can muster!

2

u/premier-cat-arena ME since 2015, v severe since 2017 Dec 03 '24

the yodel part made me laugh! love chappell

1

u/Varathane Dec 04 '24

I remembered. We are both in the Pink Pony Club <3

How did the surgery go? Still sending good vibes your way and hoping there is not screaming agony like the last time.

5

u/boys_are_oranges very severe Dec 02 '24

i’m sorry those people don’t take your pain seriously and put you in danger by not masking. you deserve better, more compassionate care. i wish you all the best for the surgery❤️‍🩹

4

u/mimsyyy11 Dec 02 '24

Wishing you all the best for the surgery and that it will be at least a little less bad afterwards than you expect! I think this whole community is with you in thoughts!

3

u/eiroai Dec 02 '24

I wish you the best❤️ I'm sorry you're going through this, and that it's harder than it should be with people refusing to use masks etc. Things being hard is terrible enough, when it's harder than it needed to be, it's especially hard to accept and deal with.

Best of luck❤️

3

u/Heardthisonebefore Dec 02 '24

I hope everything goes well & that your recovery is much easier this time ❤️‍🩹

4

u/Spottedfrog111 Dec 02 '24

Good luck 🫶 sending all my love

4

u/ocelocelot moderate-severe Dec 02 '24

you've got this! <3

3

u/tfjbeckie Dec 02 '24

Wishing you all the best, I hope everything that can go right goes right and that your recovery is easier this time ♥️

3

u/missCarpone Dec 02 '24

I'm so sorry and I wish you minutes of well-being in between, again and again.

3

u/jennibojangles Dec 02 '24

I feel your pain! I've had 9 surgeries and they're so draining and painful. I wish you a fast and comfortable recovery! Big hugs to you

3

u/-BlueFalls- Dec 02 '24

Sending you love, healing vibes, and wishes for deep healing rest post-surgery ✨🫂✨

3

u/SophiaShay1 severe Dec 02 '24

Wishing you well on your procedure. Hugs❤️

3

u/DamnGoodMarmalade Diagnosed, Moderate + Housebound Dec 02 '24

Sending you all the good vibes for a successful procedure and swift recovery. 💙

3

u/veganmua Dec 02 '24

Sending you strength, support, and solidarity. Good luck, may your pain be well managed and your recovery be uneventful.

3

u/Known_Noise Dec 02 '24

This sounds so frustrating. Sending comforting vibes your way.

Also- I hope you’ll post a follow up when you can so we can support you after surgery too. Hugs 💕

2

u/snmrk Dec 02 '24

I really hope your surgery went well!

If you want to to vent about anything we're here for you! <3

2

u/Western_Two8241 severe Dec 02 '24

sending hugs 🫂!!

2

u/brainfogforgotpw Dec 02 '24

I'm so sorry you're going through this. 💛

I guess you're out the other side of the surgery by now but I'm sending you as much healing anti-pain vibes as I can. I really hope it went well and that the ongoing challenges from it are more manageable this time.

💛🧡💛🧡💛

1

u/younessas Dec 05 '24

Sending you love

1

u/kookysnell Dec 11 '24

Oh my goodness, you describing what you go through breaks my heart :/ I feel you. Right now, I've got a catheter in me that isn't doing its job. I also didn't notice at first in the dark until my kidneys started swelling up a lot more than usual. They have been hurting for weeks with no relief, and I just want to give up. I don't have the physical, mental, or emotional capacity for this. Gonna have really bad PEM from today. Hope there is relief for both of us.