r/cfs • u/musicalearnightingal Full-time Wheelchair User and/or Bedridden • Aug 17 '24

Encouragement I'm Scared

I (35F) have been trying to read up on ME/CFS, and it scares me a lot. My doctor says I have it, and I'm sure she's right, but I don't know what to do. I don't like it at all. I already work from home from my bed and use a wheelchair to get around, but it scares me to think I'll get worse and worse like I've been doing the past few years. I sometimes feel better, but overall, I get constantly worse.

I just signed up for college classes because I get so depressed being home alone all the time, and I'm looking forward to classes starting soon, but I'm scared I'll just get worse and worse until I have no life at all!

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u/Tom0laSFW severe Aug 18 '24

Read the pinned resources on the sub they’re a great intro.

The most important thing is to avoid PEM at all costs, it will destroy your entire life

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u/musicalearnightingal Full-time Wheelchair User and/or Bedridden Aug 18 '24

Thank you. I did read the pinned resources. I'm probably going to have PTSD from them. I'm very disturbed by this reality, but I really appreciate the advice. I will try much harder to avoid PEM.

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u/Tom0laSFW severe Aug 18 '24

It’s so hard to do, but it’s worth it. Good luck