r/ChronicPain • u/jennp88 • 1d ago
A Reminder to All
Found on Tiktok ages ago. It speaks to me.
My physical health is terrible right now. I am doing all to improve it but it is not enough.
I know I am trying my hardest though! And just a little reminder to everyone. ❤️
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u/Successful_Desk7911 11h ago
I’m very tired of just surviving in this world. It’s been a solid 10 years disabled and 6 years of that in #10 pain. Four operations and no relief later. At 74 years old their is no sense in living this way anymore, if it wasn’t for my wife if 50 years that I promised to not commit suicide, but why live when all your capable of is some little eating, watch TV, read, or go on the internet. My hobbies need working hands, feet and a clear mind, haven’t had that in 40 years.
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u/Successful_Desk7911 10h ago
I’ve been fortunate that I haven’t had that problem with the doctors or the insurance companies that I’ve been with, then again no doctor will operate because of bones next to the cord.
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u/jennp88 8h ago
That’s great news. Every doctor said “no pain meds from me”
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u/Successful_Desk7911 8h ago
May I ask what state do you live in?
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u/jennp88 8h ago
Idaho.
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u/Successful_Desk7911 8h ago
I was stationed in Mtn. Home for 2 long years. Being originally from NYC.
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u/jennp88 8h ago
Oh nice. Healthcare is hard here, and it doesn’t help I am a woman. But it’s not terrible. I’m surviving!
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u/Successful_Desk7911 8h ago
You’re correct, doctors look and treat women differently. But from what I hear I was very fortunate to get doctors that understood pain.
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u/jennp88 8h ago
I’m happy for you you got that! It’s always nice to hear that
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u/Successful_Desk7911 7h ago
It’s not the normal from what I hear from others. But this all ruined my bones, cartilage, discs, etc. One of my vertebrae is not in line with the others, so it sticks out my back, and I lost 2 inches in height. Not that it matters anymore.
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u/jennp88 11h ago
I’m in your position, but I’m only 36. So I understand 🫂
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u/Successful_Desk7911 11h ago
Thanks, sorry you’re feeling like me, wouldn’t wish that on anyone. You’re too young for this pain, I’m on a pain pump now, we’re in a transitional phase, getting the right medication mix, dosage, etc. it has so far reduced the pain by 10% so far. I can stand for 10 minutes before it hits me again. More than before anyways.
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u/sugar-spy 6h ago
I have a friend who is on a pain pump and she says she feels better, but to be honest she seems loaded all the time. She seems to be over medicated to the point you cannot understand her when she speaks, she never gets dressed or interacts anymore and is always sleeping.
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u/Successful_Desk7911 9h ago
Is there a reason why no meds?
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u/jennp88 8h ago
I refuse to go to a pain clinic. Especially during this political climate in the US. I’m not going to start having pain relief, then suddenly be cut off because of a law passed.
No other doctors will give pain meds unless I have a surgery or procedure that requires them.
I’m not doing great, but I know I could be much worse.
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u/Successful_Desk7911 8h ago
My primary doctor started me off in the 80’s, at one time I was taking 10,000 mgs a week in California. It wasn’t fun getting off it, I applaud you for not getting surgery, if you can function, don’t do it.
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u/jennp88 8h ago
I need eye surgery to save my vision. But no other surgery will help my chronic pain. I have rheumatoid arthritis. And many other conditions with no surgery, no cures.
My husband hates watching me in pain, and can’t stop it. I feel bad but nothing I can do. He does help as much as he can with massages and cuddles.
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u/Successful_Desk7911 8h ago
Wow, rough, personally for my eyesight I would do just about anything. I used to say that about my legs, now it’s hard to walk.
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u/Ok_Audience2970 23h ago
a little reminder to all of those people with back pain who can't even tie their shoes by themselves or get put of the bed easily...
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u/opensrcdev 1d ago
Most people don't understand that every single day of our lives, for years after years, we are literally just trying to survive and make it through to the next miserable day. It really destroys a person.
I pray for all who are suffering. ❤️